I Can proudly say that after A LOT of hard work: Michigan was the first state to recognize September as Chiari Malformation Awareness month 2007 and 2008 and Now 2009!  I then contacted the governor of Ohio, Ted Strickland, and asked him to do the same which he did, and 2 Ohio chiarians were sent the confirmation! This achievement makes me proud for all of us! We are finally starting to get the recognition that we all deserve. Please join me in writing to your state Governors and asking them for their support so they too will get on board with our amazing movement! If you would like a copy of the letter I use, please contact me and I will email it to you.

	DEVIN'S BATTLE
What is Chiari Malformation (Arnold Chiari Malformation) Chiari Malformation is a malformation that may occur with development of the baby or in later life. The malformation consists of a protrusion of the bottom portion of the cerebellum into the upper portion of the spinal canal. This malformation can lead to headaches, arm or leg symptoms, or problems with the nerves that supply the head and neck. When appropriately diagnosed, treatment can consist of surgical decompression of the base of the brain.
Michigan Chiari Malformation Awareness MONTH Information HERE!

Thank you for visiting my site. My goal is to spread Chiari Malformation awareness, and to encourage through inspiration to others like myself, that there is support, help, and a friend to lend a supportive hand.  Please take the time to visit the other websites that I have included on my Favorite Links page. You are not alone in this battle. WE are a team.
My BLOG is back up and running so please use it!! HAD SURGERY: JULY 31, 2009 ST. JOES HOSPITAL Another Angel has stepped forward in an effort to help my family. Please visit the following: http://www.lendahelpinghand.org A benefit is being planned for October to take place in Davisburg, Michigan.  More details to come but tentatively mark your calendars for October 3, 2009 and contact Michelle Phaup at michelle@lendahelpinghand.org to volunteer, make a business raffle donation, or for more information!
I am 2 1/2 weeks post surgery and in A LOT of PAIN so please bare with me as you contact me......I am a bit behind on all communications but rest assured, I read every single letter, or message sent my way personally! Aug-09

Together we can make a difference!  ~ Devin~                          

Don't forget to Send me an email and say Hello!!! devinkal@hotmail.com

Click on the image above to help support research for Chiari Malformation