Thank you all for for visiting! Please if you have questions for me post them on my forum so that others can also see the answers.
Or if it is of more of a personal nature please feel free to email me at devinkal@hotmail.com
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Home Journal Photos Inspirational Favorite Links
My Battle Chiari Info Email Guest Book My Blog Message Board
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Due to the ridiculous amount of spam I have been receiving on the Guest Book I have been forced to shut it down. I have left the kind words from each of you on the site and will continue to do so to help remind myself that I have helping others. If you have any further comments or questions please feel free to post them to my message board at the link above.
I miss you Devin. How are you feeling? Kim
I miss you Devin. How are you feeling? Kim
Looking forward to hearing all about your NY trip gal. I am so glad you are finally going to get the help you need. Linda www.lvwnet.com
hey hun, good luck with your trip to NY this weekend. I hope you have fun with the kids before you leave. I also hope all goes well and the Chiari Institute! Let me know how you are doing as soon as you can!
FYI: Your newspaper articles were wonderful! You look SOOO good! Pam, Oxford
FYI: Your newspaper articles were wonderful! You look SOOO good! Pam, Oxford
Devin DO NOT let hte negative BS get to you. You have done so much and you know the truth. Do not let someone take your dignity or accomplishments from you. S ASAP
Devin DO NOT let hte negative BS get to you. You have done so much and you know the truth. Do not let someone take your dignity or accomplishments from you. S ASAP
Devin I know you are getting excited as time arrives for your appt in NY. Was Monica able to help you with vouchers? Best wishes Roz
I have been suffering with headaches, neck pain and stiffness, and fatigue for years. The doctor always told me it was tension headaches. In April I started having tingling and numbness in my toes and then it moved up my left leg, arm, and face. I went to the ER thinking I was having a stroke. They did a CT and found nothing and sent me to a neurologist. I had a MRI and they said I had Arnold Chiari 1. He says he does not want to do surgery if at all possible. I am between a 5-6 whatever that means. He wants to make me comfortable. He started me on a medicine called Topomax and that medicine made me forget everything, even in a middle of a sentence I would forget what I was saying. I called it the "stupid" medicine, because that is how I felt. He took me off that and now has put me on Mobic to try to help with the pain in my arms and legs and has ordered another MRI of the brain and neck. My pain in my arms and legs come and go. The headaches did ok for a while, but they are coming back again. I am always so tired. I know my husband and kids just think I am lazy. My son actually told me the other day there is always something wrong with you. This made me feel useless. How can I make them understand how I feel. I am wondering if I need to get another doctor. I do not want the surgery, but I do not want to hurt all the time. My sons friend mother died of a brain tumor Monday and this just makes it all feel more real to me. Scary. I feel alone. When I try to explain this to people they look at me like, well you seem ok. I am sure it is not as bad as you make it. What happens if you do not have the surgery? Do you just suffer the rest of your life? Can this get worse? How long are you in the hospital? Just curious. What is frustrating is one minute I can be ok and then all of a sudden bam, I have a huge headache. I have one now. It is so bad I feel like pressure is building up in my head. I just found this website today. Thank you for being here to listen. If anyone wants to e-mail me my address is proudmomoftwo11@yahoo.com Thanks, Michelle Brady
Thank you for our phone call., I appreciate it SOOOOO much! You are the best. K
5 more days till our benefit for you Devin! I can't wait! Everything is almost ready and we are getting closer and closer to go time! I believe if we are both positive about it we will have a great turn out for our spaghetti dinner to raise the money for you to get to NY!~Lisa~
Love you, Get better Devin, Kelley, Ohio
Good luck in NY TCI! You deserve to get better Devin. LOve, Pam Oxford, MI
Keep it up Devin. I hope NY will/can help you! God knows that you deserve it! PAM, Oxford, MI
I CANT WAIT TIL SUNDAY! I CANT WAIT TIL SUNDAY! oh yeah I know something you dont know. la la la la la la! ~you know who this is~ p.s. (shhhh its Lisa) sorry i'm getting excited and being a dork today!
Hi I found your site looking through google about information on Chiari. I was diagnoised a year and a half ago. I also have to go in and have the surgery to relieve the compression. I think all that you are doing and have done is wonderful. Not many doctors are very familiar with this.. Which is saddening. I also used to live in Michigan, I just recently moved to California. Im scared to death about the surgery. I dont know anybody who has this or has gone through the process. I applaud you for being so brave, and for getting awareness out there. Thank you so much. Kayla
Wow, Devin you are going to NY very soon. I pray that they give you back the life that you once had. God knows that you deserve it. You are such an inspiration to many, I have seen the other websites but you were first and are getting it done! Every site I am on I hear our name. I think its wonderful that in the position you are in you want to dedicate yourself to teaching others. Jamiie, California napavalley.edu
i love you devin! i hope you feel better, and try to relax please! i am begging you to relax and let me worry about the benefit dinner! see you soon! Lisa
thank you so much for doing this. my sister suffers with this disorder and emailed me your site for insight. i try to support her but we live on opposite sides of the country and i can only attempt to comfort her with what i know and understand from my life,. this is my first experience with this and your site gave me alot of understanding of what she goes thru day-to-day. she has young children also. putting things together we can see that she suffered with this even as a child. thank God she is aware of what it is now and knows she is not alone in suffering with this; she is not a 'freak' as she thought for so long. God bless you and keep you safe while He guides you thru your healing. jen k philadelphia pa
hi i love your website and the things that i hear from asap that you do for Chiari awareness. I think you are incredible and many people talk good about the things you have achieved Keep it up for us we appreciate it so much. <<<hugs>>> Lynn, OH
Hi Devin, Thank you for being there for me and many others. Everytime I am down I call you or write to you and you make me feel so much better thankyou for that. MY husband says that we should hire you full time to put me in a good mood. lol i really aprreciate you and your website and all that you do. thank you hugs and kisses Breia, Brlaw@yahoo.com
Devin Did you notice that the Governor of Ohio left out a HUGE part in the OHIO Proclomation?? I believe that the Health Dept., helps to make these decisions BUT if you read it you will notice that Mr. Strickland, Governor left out the "personal ine" that all documents should have! Take a look and compare them. He didn't mention wanting other citizens to learn about Chiari and the importance of finding a cure. Since, you wrote initial letters and started this idea maybe you should inquire about it! KEEP UP THE GOOD WORK, Pammy in PENN
Devin do not ever let anyone feel that you are burdening them by asking for help. That person is obviously oblivious to the fact that you help so many people every day. I do not know of another human being who dedicates every day to talking to people like me about chiari and does it simply to fo ir You are the most unselfish person in the chiari network. I dont ever want to hear you cry again. God gave you this position for a reason and you and all of us know what it is. Thank you Devin for always being there for us and for fighting for our chiari rights. PS The new message board is getting busy, it is great! C
IN REGONITION OF Chiari Awareness Month Chiari malformations (CM) are defects in the cerebellum, the part of the brain that controls balance, that create pressure on the cerebellum and brainstem which may block the flow of cerebrospinal fluid to and from the brain. The condition was first identified by German pathologist Professor Hans Chiari in the 1890s. He categorized the CMs in order of severity: types I, II, III and IV. The cause of Chiari I malformations is unknown but scientists believe it is either a congenital condition caused by exposure to harmful substances during fetal development or that it could be a genetic condition, as it may appear in more than one family member. Symptoms usually appear during adolescence or early adulthood and can include severe head and neck pain, vertigo, muscle weakness, balance problems, blurred or double vision, difficulty swallowing and sleep apnea. The National Institute of Neurological Disorders and Stroke of the National Institutes of Health is conducting research to find alternative surgical options and identify the cause of the CMs to create improved treatment and prevention plans. NOW, THEREFORE, I , TED STRICKLAND, Governor of the State of Ohio, do hereby designate September 2007 as Chiari Awareness Month throughout the State of Ohio. Ted Strickland Governor
Devin, How do I join your group for support? I hope I figure it out, I got this referral from a friend who thinks that you are wondeful! From your website and your email I feel the same! You are suck a kind person, and your story is amazing! Love and prayers, Joyce
God Bless you Devin!! You are so courageous...I was diagnosed with Chiari a year ago and I am struggling with whether or not to have decompression surgery. Keep up the great work and my thoughts and prayers are with you always:) Michelle in Massachusetts
Hi, Iam Ruthie Alexander a Parish Nurse at New Mt Moriah, here in Pontiac, I will do anything to help tell me how to send $$$$ Your web-site is great, God Bless you RUTDYRUTH@cs.com
you are the strongest person i know. and just think yesterday, "appointment day" was not so bad cause afterwards aleah and i came over to see you and cheer you up some more! her little chubby cheek dimples smile is so cute isnt it?!?!?! we love you! ~Lisa~
devin i think you are doing a great thing trying to tell everoneone about chari i am so proud of you and thankful you are in my life i wish i could do more for you so if i can call me because i really want to help you get better and when i get payed i am donating i love you so much and always remember stay STRONG and i will always be here when you need me love always and forever nikki
Thank you for adding us to your site. You have been like a big sister to me since I started classes at Davenport when we were both there taking classes. And what are family and friends for if not to help each other in their times of need and their darkest hours. I will continue doing everything in my power to help you and your family as much as i can as long as i can. I will not give up, not even if you do! But with me around i wont let you give up! I love you and I know you will get to NY and back and things will get better, it just takes time as you well know.~Lisa~
You are having a benefit, that is great! Where is it? I LOVE THE new additions! Tammy, OH
:) WOW!!!!
This is the best! SO much info on one site and so personalized! This is great. THANK YOU
I love the new additions. I am so excited to see what comes out of your scrapbook page, I know how talented that you are at scrapbooking! I am excited for you to show everyone online all of your talents/and thoughts online! You are doing so well on here! I saw that you got a new walker donated YAY! I am excited for you! I know you had issues with your other one! Love you and hang in there,I know that you always do BUT I hope you keep trying to smile. NY is coming SOON ! I am so happy for you I hope that you get there,I know you will all find a way, god will provide what you heed Love. LISS
Devin, I am doing what I can to help you. I am so glad I finally got in contact with you again! I am pretty sure we have our dinner August 4th from 2-8pm tell everyone you know about it and it can be a way for them to donate a little at a time to you! I will be finding out a price for the dinner tonight when I talk to Kevin's dad. I will let you know what he says as soon as we leave there. Also I am printing a ton of info off of this site for him to take to the meeting for the final decision! I love you so much and I hope we can get you what you need!!! Love you lots and lots, Lisa
Found your web site through Carrie... I wish the best for you Dear... Brian bseiter98@hotmail.com
I hope that you are ok! We love you , Devin Hang in there Remember you are wonderful Remember you were devinsdiary before others Remember that you have inspired us all Julie, TX
Devin, You are a blessing to everyone!! I cannot thank God enough for bringing you into my life. I know that you are not your usual self, and now it is time for all those you have supported to give back to you. We are here for you, you just have to let us be there for you. {{{{{ HUGS from CALI }}}} Terri
Devin, I hope you get better and can find a way to get all of your surgeries done! You desrve it, we all do but you help so many chiari individuals just by being you and through your website Kim, OH
Devin, I hope you get better and can find a way to get all of your surgeries done! You desrve it, we all do but you help so many chiari individuals just by being you and through your website Kim, OH
I hope that people will reach out and help you. You have done SO much for everyone else! Jessica, TX
Devin, I was also wondering when are you off to New York? N~Maryland
By the way. I know you keep falling and that the walker is not helping did you get your wheelchair yet?(CCI)(group) I am sorry that all of this keeps going down hill for you. Someday there will be a cure, I just know it. N~ Maryland
Have you heard from TCI yet? I know it is a LONG trip and very extensive testing for Tethered Cord but it will be ok, I promise. Been there with my son, Joey. I heard from Rhonda that you are not well at all. Anyting that I can do? I know you sleep alot ( heard that too) But, if you need to talk ( we all have to get it out sometimes) Call me. I am always here for you. You have it a lot rougher than most. I say a prayer for you every night Devin. Caitlyn Jackson, Anne's Sister
Devin, OMG! I cannot believe everything that has happened since your first two surgeries! I am proud of you for hanging onto life, some of us give up. I am sure that it is hard. I hear your name ALL the time from Chiari networking, You have done good! I am concerned about all that has happened to you recently! Are you feeling any better, stronger? Whens the trip to NY? I know they will give you the treatment/surgery that you need. Hopefully that will get you on the right path, poor thing..Hang in there! :) Anne
I love your website we need more like them . I found your site searching myspace about Chiari . Good Luck Feel Better Leigh
Devin, Your new Blog is great! LOVE
How are you, Devin? I like the new pictures. I am proud that you are still working at your dreams! Amanda
There are so many sites out there But always remember that you will be my #1. Your Chiari Site is the best :) Jackie, MO
Hi, I do not have Chiari but my siste does and my heart goes out to anyone that has it. I am so happy that there is someone like you who can educate people and support people with this condition I have heard your name so many times, about how much people appreciate your website and your personal support. Tamara
HAPPY 4th , DEVIN MICHELE! WE LOVE YOU! Hope that you are feeling better.....or at least trying to fake it... :) J
Dev~ I wish I was closer so that I could help you. I know you need it and I wish people everywhere would reward you for all the good that you do. You turn BAD situations into miracles for people and smile no matter what. Life has given you a really bad hand and you have played it wonderfully, and wisely. Keep doing your Chiari work. Don't stress about the little things...god, or someone will bless you with them I promise. Give Paige and Micah a GIANT kiss. V-NY
Where are you?? Whats going on? Are you ok? Devin..Im worried, with all the stress you under with all things you recently changed in your life! Please call me! What has happened? Whens the next surgery?
The time you dedicate to Chiari is Awesome, Devin. You help so many and what they don't know about you that I do, is that you do all of this while feeling horrible and not able to even take care of yourself. I AM SO PROUD TO CALL YOU A FRIEND, DEVIN Christine F.
I just purchased some of your bracelets, I am happy to support such an important cause! I commend you on your strenght! Stay strong :)
Hi, It's Kelley. I saw your posts. I think what you are doing is amazing.We need more poeople willing to do the same, NC
Got your sire from ASAP, this is incredible. From one Chiari to another, Keep on going! I hear your name so much. You are making such a differnce in the Chiari community. I cant wait to read your books. Your blog is so addictive becuse it is so real. Thank you for ALL that you do, Devin feel better,Jaimie
Devin, I heard that you have not been doing well at all. It must be so hard for you. I give you much credit for getting up each day, plugging along and taking care of your children! Many healthy people can't do that well. I think of you often. Your family must be so proud! I saw your article, in the paper, WOW. You look great though, you really do. You are getting so much awareness out there for Chiari and it is amazing Christina, MI
Devin, I heard that you have not been doing well at all. It must be so hard for you. I give you much credit for getting up each day, plugging along and taking care of your children! Many healthy people can't do that well. I think of you often. Your family must be so proud! I saw your article, in the paper, WOW. You look great though, you really do. You are getting so much awareness out there for Chiari and it is amazing Christina, MI
Wow, I had no idea, you are one strong woman!!! Hang in there, get well. Love, Lauren.
Hey sweetie! Miss ya! I hear about your name so many times when people are talking about others out there trying their best to raise awareness and make a difference! You are awesome! Love ya, ~Carrie
Your doing a GREAT job babe. Even with how hard it is for you, you are still able to lift all of these people up and make them feel better. It takes a special kind of person to put their pain and misery aside to help others. I love you.
WOW
DEVIN YOU ARE GOING THROGUH SO MUCH! I FEEL HORRIBLE FOR YOU! I HOPE YOU FIND A WAY TO GET STRONGER AND FEEL BETTER, SOON. I SAW YOUR ARTICLE IN THE PAPER, IT'S AMAZING THAT YOU ARE SO STRONG AND YOUR CHILDREN ARE ADORABLE. ANGELA, ORTONVILLE
DEVIN YOU ARE GOING THROGUH SO MUCH! I FEEL HORRIBLE FOR YOU! I HOPE YOU FIND A WAY TO GET STRONGER AND FEEL BETTER, SOON. I SAW YOUR ARTICLE IN THE PAPER, IT'S AMAZING THAT YOU ARE SO STRONG AND YOUR CHILDREN ARE ADORABLE. ANGELA, ORTONVILLE
I hope you start feeling better soon. I saw your article and I am sad for you and your family. I have never heard of this before. You are a strong person. I hope one day you will start to feel like yourself again, NEVER GIVE UP Someone who cares, Ortonville, MI
This is amazing. You should be SO PROUD! I saw your article in the paper and had to visit! I am sorry that this condition has taken so much out of you. It is very sad to know that this exists! I have never heard of it before. I feel bad that you are in pain, REST well, Jodie M, Ortonville, MI
Devin, I think what you are doing is a wonderful thing for everyone. Especially for people with Chiari and their families!!! Even when you hit your low point just remember you are doing a great thing. Think about all the people you have touched and helped. Merideth son Matthew 4yrs old Chiari 1
Wow, I thought I was the only person named Candice who had Chiari (reading your last visitor!) I found your site from the Chiariconnectionsinternational.com website. I wish I had the know-how to start a website, maybe one of these days. Keep plugging on, Devin! Candice in Baltimore, Maryland
Wow, I thought I was the only person named Candice who had Chiari (reading your last visitor!) I found your site from the Chiariconnectionsinternational.com website. I wish I had the know-how to start a website, maybe one of these days. Keep plugging on, Devin!
Hello! This is Jaime. I sent you an e-mail. Just wanted to say thanks for putting this site up for people to be aware of Chiari! I look forward to talking to you for some advice for me and my chiari symptoms...The pictures are crazy!
Hi Devin, This site is so full of important information,it's awesome!!! Thank You for sharing your battle,and your kind words. Remember,I'm here for you too. Stay Strong!! Talk to you soon!! Love,Shelly (Auburn Hills, MI.)
Devin, I saw your article in the paper. I am so sorry to hear about this. You are such a great person, and Mom, and I know you and your family will get through this! You are all in my prayers. Sarah Ashley (Micah's kindergarten teacher :)
Found your link on the chiari malformation syringomylia newsletter site and loved it. I wish we could get more awareness out here in Ohio too. It took me 2 years to get a diagnosis and am 9 mos post op now and still fighting an uphill battle. Doctors just do not believe how serious this can be, I just wish they could walk one day in our shoes with our pain then they sure would change their tone. Good luck with everything from one "zipperhead" to another. Holly
hey devin,ty for sharing ur story .i was three years with no diagnises and now i have one i cant find a dr who knows of this..i just won my disablity,so thats gave me a brighter out look some..im interested in the braclets but i dont have a paypal can i send u a money order..gma_baby@yahoo.com
Hi Devin, Way to go! Nice job! I pray there are more people out there like you who give of themselves to others! You are a wonderfully strong, vibrant woman with much to share! Thank you for taking the lead in helping educate our world about Chiari! As you know, there are four of us in my family with Chiari and Chiari related conditions: Mikol, Daniel, Lauren, and me, Nicole. So many people suffer, needlessly. With education comes knowledge … and with knowledge … maybe a cure. Thanks again for your dedication and hard work! With kindest remembrances and much respect ~ Namaste, Nicole Cleveland, OH
Hi Devin, Great site! I got the link from CCI. Hope everything is going well... Monica
Great site! Got the link from the CCI page. Susan
What a very good site: very interesting to hear your journey with Chiari. i live in the UK and found your site through your e-mail to chiari connections. Jeanette UK decompressed for acm1 in 1999
Thanks for your site. My son has just been diagnosed when he had an MRI for a ruptured cervical disk. We'll watch the Chiari so see what the next step is. First concern right now is the disk. Good luck to you and we'll be in touch. Sandra
Thanks for the website. I don't feel so abnormal now!!! Angie in MN
I just have been diagnosed with Chiari Maformation and am having another MRI done on the brain to see if I have fluid surrounding it. I also have a syrinx condition in my spine. Any advise for a newcomer? Thanks, Angie in MN
Hi, My name is Candace. I live In Davison, Michigan and I read your newspaper article! I have never heard of Chiari before, and your website gave me a lot of insight and knowledge about it. I hope that people locally will all reach out realize that we need to help you and your family as you are helping so many others like yourself. What do you need? Food? Clothing? Please let us know! Our communities all need to reach out and help you during this horrible time. Stay positive and strong. Your children are beautiful! I will be buying a wristband for sure! God Bless You, Candace, Davison
I read your article and I am amazed. You three are so cute! Devin, you look amazing considering all that you have been through! I hope that people really read your words, and hear your pleas to spread awareness by buying your wristbands to raise awareness. We as Chiarians need proper care and treatment! All that you are doing is amazing. Dont ever stop fighting or give up hope. Love, Tabitha, WACMA, (Ohio)
How's the recovery going? What does your neck look like now? Can you hold your head up? Use use a walker for balance? Oh my, Jamie
I hope you are healing well!
Very good site. Thanks for putting it out there. You are strong and brave.
Good site. Thank you!
I saw your article, OMG! I guess, i really never realized how bad Chiari is.I am so sorry. I was ignorant on the condition. If you need anything, please ask. You are in my prayers, always. Love, Gail
By the way, the bracelets you made(desined) look great! you are so creative, Miss Homemaker,K
Hey hun, How are you feeling? I havent heard from you in a while. Im sure they have you on sum strong medicine so I am sure you are sleeping a lot. I miss you though! Props on the site it looks amazing!!!!!!! I hope you are hanging in there like u always do. Keep the faith and call when you are up and around, K
Devin, How is the recovery going? I hope that you and the walker are doing ok....I say that with sympathy and humor because I know how hard it must be for you, actually I don't know how you do it, tho you do not have a choice! I hope your head is feeling better and that you are being careful and healing well. I pray for you always! Keep your chin up and be proud of how far your website and knowledge has come and spread. Congrats on Jennifer Granholm contact, and newspaper article! Love, Jessica
HAPPY MOTHERS DAY DEVIN! Keep up the wonderful work. Stay strong as you always do, and keep your journal updated so we all know what's happening in your life with your condition! I love the wristbands and I will be ordering soon. They are great! YOU SHOULD BE VERY PROUD OF YOURSELF, and I can't wait to see the newspaper article! I hope that you felt ok today and had a peaceful relaxing day, you need it. Miss you, Love Beth
Love ya girl!!!!!! hope your having a good day, I am thinking of you and can't wait to talk to you. What would we do without friends???? CM~wow my initials are the abbreviation for Chiari! Guess it was ment to be!
Hi Devin...Your website looks great! I am so pround of you for sticking with your dream to spread Chiari awareness! It is wonderful that Granholm has given September 07 as Chiari awareness month!!! Keep in touch. Kim
Thank you for your story. I don't have Chiari but I have Syringomyelia, a syrinx (cyst) within the spinal cord, most of the time accompanied with a Chiari malformation but it can be without. I live here in Michigan and found your website from the ASAP.org message board posting. I'm all for a Chiari & Syringomyelia awareness in Michigan. Most of the spinal research is done on spinal cord breaks but not the gradual spinal cord vertical TEARING. RoadGlideMama
Hello, Your site is great. Regards, Valintino Guxxi
Hi. I found your site by searching "Chiari" with google. I can totally relate to your journal. I have Chiara. I was diagnoised in 2000 after years of doctor after doctor giving me antidepresants and making me feel crazy. Had the surgery in 2000. Did miraculously well for two years and then began to slide down hill from there. Here it is seven years later and I am really sick with Chiara symptoms and am looking at surgery #2. In your journal when you talked about your family having to bust butt to keep things together, that's how my family is now. I have shared your same feelings about this terrible illness. I really hope you get better. God bless you. Gretchen My story is on http://www.shiningmylightforhim.com
ALL I CAN SAY IS WOW!!! YOUR A STRONG WOMAN GOOD LUCK WITH EVERY THING!! I FOUND THIS SITE, ON CAFE MOM IAM A PART OF THAt group. my name is amanda and iam from omaha ne . chelseyJOMARIE@yahoo.COM
I found this web site very informative. I knew nothing about Chiari. I work in Paige's classroom & she told me about it. Cathy
I came over from the ASAP.org website due to the previous poster's comments there. How can we set up an awareness day for other states? kathymichelle@usa.com Thanks much from a fellow Chiarian!
This is awesome . I shared it on the ASAP website . We need more people like you . Keep up the great work .
"Too much brain to contain" I LOVE IT! I was diagnosed In December of '04. I was supposed to have decompression on 2/2/07, but I found out I was pregnant 2 weeks before. I guess this will be my last baby, so I can work on my health. Plus that 3 is plenty. Anyway, I found the link to your site on MySpace. Armindie Jones- Cincinnati, Ohio Dylandevonsmommy@juno.com myspace.com/tyrantoftheweek
So many changes on your site. It is wonderful. Keep up the good work! Sherry
Wow, all I can say to this.
Devin, I am going to say THANK YOU for this website. I found info here that I needed and I think it is great that you have the courage to fight for this and spread awareness! Your pictures are well, scary but amazing at the same time. You are an inspiration with all of us "Chiarians!" How are you feeling post-surg? What symptoms do you experience? Tonya, NC
Devin You are to be commended for your web site and effort to increase awareness of Chiari. Chiari is an uncommon but not rare medical condition. Many with Chiari remain undiagnosed and untreated. Many of these are misdiagnosed and not getting appropriate care or receiving treatment that can make the condition worse. Anything done to spread the word is helpful and welcome. Ray D'Alonzo, Ph.D.
This site is such an INSPIRATION to ALL OF US CHIARIANS! Thank you for the support, awareness, and knowledge on this website!
Hey girly, I know it's been a while since I've written to you on here. So I thought since it is slow at work for the moment I would write to you. You've come a long way with this site and from the looks of it you have made a lot of new friends. With this site, you and your Chiari friends will be able to help new Chiari patients and non-Chiari patients understand what each of you go through. It will help friends of Chiari patients now how to handle different situtations. Like you have said many times, you need all the support that you can get from friends and family. Devin with all the support that you give other people I hope they help you with getting Chiari Awarness Day on its way. With lots of Luv! Terria
awesome site!